Where's The Volume?

Aug 16 2009

Tuesday night was spent hydrating Camille ready for her second dose of Chemotherapy. From Wednesday morning for the next 24 hours, her body was being pumped with a toxic drug Methotrexate. This particular drug is pretty hard on the kidneys and as soon as the 24 hours was complete, three days of flushing through is delivered to wash it through the kidneys and out as urine.

Camille has made us very proud in the way that she has taken the Chemotherapy. Even though she has only had a couple of sessions so far, she doesn’t dramatise the experience and even when she was sick on the first night after the Methotrexate, she ended up being more perky than previously that day.

Hayley and I do feel pretty good when we are at Addenbrookes, it gives you as parents an amazing sense of reassurance. I would say the only real negative with the ward is the mixing of toddlers Camille’s age with teenagers in adjacent beds. During this particular stay Camille was paired with a teenage boy who is going through a Brain Tumour also. It was clear from the first day that their daytime hours did not match and when Camille wanted to sleep at night he was still active on his Playstation and when Camille woke up he wanted to sleep. In addition, teenagers are pretty stubborn and after it got a little heated with Hayley he was purposely trying to annoy her. It worked and after a while we got moved to another room so that Camille could get some sleep.

We were also greeted this week with the sight of Mr Garnett, our Neurosurgeon consultant. We hadn’t seen him since diagnosis, but as he glided around the corner like Christopher Dean, Hayley and I both stood to attention. He was actually coming to see a little girl on our ward who had been hit with a golf club, but he did pop over to say hello before gliding back out the door to the operating theatres.

After two days of being flushed through after the Chemotherapy, the levels of drugs in her were getting very close to the level required to be allowed home. Unfortunately, she had a small spike of her temperature which means that she needs another two days of antibiotics and of course that can only be done in hospital. That means a full week in Addenbrookes.

Camille has been sick a few times on this dose of Chemotherapy, but she does tend to do it with some degree of style. After going quiet for a few seconds, her mouth opens and away she goes; within seconds she is back to her bright best. No tears, no drama, she is the Barrack Obama for throwing up.

Yesterday, as I was wheeling Camille into the garden I received a phone call from Troy at the UK Bungee Club. It had slipped my mind that I was due to be doing a Bungee Jump that afternoon. He was very understanding and said that I can rearrange a more suitable time. What I will look to do is to now jump in aid of the Camille’s Appeal fund that we are setting up. The money will be held for a while and will be used either for any major needs Camille has over the next year, but also to make a donation to the charitable funds that have supported us to date: Addenbrookes, CLIC Sargent and maybe the Sick Children’s Trust. Good on ya Troy.

We should be home on Tuesday, only for a week before the next Chemotherapy session, with the major possibility of a further infection occurring in the meantime. We have now got the date for the next scan, which is in the week commencing the 14th September 2009. We've had a pretty positive week this week talking to the Oncology team here at Addenbrookes.

Finally, you may have noticed that Google have stripped the adverts from my site. Apparently there has been illicit clicking of the adverts which cause a major risk to their advertisers. My account has been closed even though I have no idea who is clicking the adverts. I have appealed, but like most other corporate, I've got no hope.